Our mission
The mission of the International PNH Interest Group is to advance optimal treatment and care of people living with paroxysmal nocturnal hemoglobinuria (PNH) and related conditions; to provide instruction, information, and training to health care providers; and to help further research on new and effective treatment options and improved patient access to approved therapies and treatments.
More about us
Collaboration announcement
The Max Foundation (Max) and the International PNH Interest Group (IPIG) Announce Collaboration to Improve Care and Management for People Living with Paroxysmal Nocturnal Hemoglobinuria (PNH) in Low-Resource Countries
More about the announcement
Save the date!
The International PNH Interest Group’s 2nd Scientific Conference will be held on May 15-16, 2025 in the beautiful city of Paris, France. This conference will bring together leading experts and professionals in the field of PNH to share the latest research, advancements, and insights.
Info and registration
Become a member
If you are a clinician, academic, and/or researcher involved or interested in PNH research or care and are not currently an IPIG member, please considering applying for membership. There are no joining fees or membership dues. Learn more on our membership page and/or email your membership questions to info@pnhinterestgroup.org
Apply for membershipFADP Article 14 Representative
Pursuant to Article 14 of the FADP, The International PNH Interest Group has appointed EDPO Switzerland as its Representative in Switzerland. You can contact EDPO Switzerland regarding matters pertaining to the FADP:
-by using EDPO Switzerland’s online request form: https://edpo.com/swiss-data-request/
-by writing to EDPO Switzerland at Rue de Lausanne 37, 1201 Geneva, Switzerland